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Manipal University and Manipal Hemophilia Society will jointly launch the project 'IDEEA' (Identification, Diagnosis, Education and Empowerment for Action) and distribution of higher education scholarships for students with bleeding disorders in South India. Dr. Annamma Kurien, President of Manipal Chapter of Haemophilia Society said the launch be held at Shirdi Saibaba Cancer hospital and research centre in Kasturba Hospital Campus, Manipal on 28th August at 3.00 pm. IDEEA is supported by the grant from Novo Nordisk Hemophilia Foundation (NNHF), Switzerland.
Through this project the accredited social health activist (ASHA) will get the training to identify the suspected persons with hemophilia and other bleeding disorders in the community. The suspected people with bleeding disorders will undergo detailed tests in Kasturba Hospital, Manipal for the accurate diagnosis and the sub typing of bleeding disorders. A specialized hemostasis and thrombosis division, Kasturba Hospital, is being set up also supported by the Manipal University. Patients from the 4 districts of Udupi, Dakshina Kannada, Shimoga and Chikmagalur with suspected bleeding disorders will get facilities for free testing. This project will also aim to empower persons with hemophilia by education to improve their quality of life. As a part of empowerment, a scholarship distribution for the student with hemophilia to support their higher education will also take place during the function. This scholarship is sponsored by Save One Life (SOL) organization, USA. This year eight students are selected for the scholarship. Hemophilia is a genetic, life threatening bleeding disorder in which blood does not clot normally due to the deficiency or absence of clotting factors. The Manipal Hemophilia Society, a registered chapter of Hemophilia Federation of India (HFI), affiliated to World Federation of Hemophilia, Canada (WFH) started its functioning in the year 1999 in Kasturba Hospital Manipal. It provides comprehensive medical services to the patients, who are suffering from hemophilia and related bleeding disorders. More than 250 patients from various districts of both Karnataka and Kerala are registered under Manipal Hemophilia society. It conducts regular hemophilia clinic once a month on every second Saturday for the persons with hemophilia, where a team of medical and allied health science professionals from various specialties trained in hemophilia care are available for the proper care and management. The Society also provides anti hemophilic factor (AHF), a costly life saving medicine at an affordable rate to the persons with hemophilia. The support of Manipal University has sustained the care of hemophilia patients.
Courtesy: Times of India
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